pws

Ellie Johnson was diagnosed with Prader-Willi Syndrome, or PWS at age 2 in 2009.  PWS is a rare genetic disorder that is due to a abnormality in the 15th chromosome, that causes an excessive preoccupation with food, which can cause obesity-related health problems. Hypotonia (sometimes called “floppy baby syndrome”), small stature, cognitive delays, and other developmental disabilities are also ass